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Testing serum levels of vitamins can be misleading because high amounts in the blood does not necessarily equate with adequate cellular assimilation. So, if he is still consuming those two foods, you might consider a trial elimination of them. The dairy protein casein is similar in structure to gluten and causes the same reaction as gluten in a certain percentage of celiacs. Problems with dairy can be caused by lactose intolerance but not always, even though that is the assumption. Since your PCP is not a celiac expert you might suggest this be done. Were any other celiac antibody tests performed other than the tTG-IGA? I wish more docs would order a full celiac panel instead of just the tTG-IGA, especially with children since their immune systems are still immature. So, unless there was a scoping and biopsy that demonstrated there was villous atrophy, I would question whether or not celiac disease is the issue. And he also does not seem to be improving on a gluten free diet. His antibody score is very nominally positive. Maybe I missed it in your lengthy narrative but has your son had an endoscopy with biopsy of the small bowel villous lining to confirm celiac disease? That is normally done to confirm celiac disease unless the blood antibody levels are extremely high and in his case that certainly was not true.
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